My 12 yr old daughter was diagnosed with Crohns one year ago. She gets infusions every 6 weeks (Remicaid sp?). After one year of getting infusions her blood work is coming back normal but her doc wants to do another colonoscopy just to get a close up. I know there is no cure but our hope is that she goes into remissions so that the frequency of infusions goes down. My question to everyone here is anyone currently taking remicade to treat crohns... if so how is it working? I have researched the disease a ton and don't like what I am reading. The doc that treats my daughter tells me I shouldn't rely on the internet for crohns info accept for a few accredited sites. So I am conflicted... is he telling me that so I don't worry about the horrible things to come or is he telling me that because he feels she will be fine. Some of the things I have read is:
1) crohns can lead to colon cancer.
2) It is worse than colitis because colitis can be corrected with surgery whereas crohns cant.
I hate that such an innocent girl has to suffer... I guess it could be way worse (she could have terminal sickness) but as any parent here can attest, any major sickness that happens to your child is heart breaking. Any input from those in the know would be appreciated.
1) crohns can lead to colon cancer.
2) It is worse than colitis because colitis can be corrected with surgery whereas crohns cant.
I hate that such an innocent girl has to suffer... I guess it could be way worse (she could have terminal sickness) but as any parent here can attest, any major sickness that happens to your child is heart breaking. Any input from those in the know would be appreciated.